Child Sleep Apnoea – The day my daughter nearly died.

apnoeaWell, a while ago, I nearly lost my daughter. It’s funny because most of the time I forget, and that is ok. Life goes on. She is fine now. Just get over it. What people don’t know is that I will never forget that moment when my daughter stopped breathing and I could have lost her forever. It changes a person.

Emily was a reflux baby. Gosh, it was a miracle when she wasn’t throwing up all over the place. By about 7 months, it had resolved itself and thankfully we all moved on. From 8 months old, she developed this constant running nose. She was one of those ‘snotty kids’. By 10 months old, she could wipe her own nose with a tissue it was that bad. We thought about buying shares in Kleenix! This runny nose coincided with her starting daycare.

After months and months of colds and ear infections that simply would never go away, I was adamant that something was not right. Often being fobbed off by doctors that is was ‘environmental’ due to daycare, I was thinking I was becoming just another paranoid, over sensitive mum.

The biggest red flag for me was that she was always tired. Emily was an awesome sleeper. She slept through the night – all night and took very long naps during the day. I just couldn’t understand how on earth she was constantly exhausted.

We finally got a referral to an ENT. During the appointment, he was once again fobbing me off. He told me it would pass and to just accept it. I felt frustrated and deflated. I wanted answers. He suggested if I really wanted to, I could take her for an over-night sleep test. Would I, wouldn’t I? Maybe it was all in my head.

Long story short, I did take her for that test and guess what? She was diagnosed with ‘severe sleep apnoea’ and required surgery immediately as the strain on her heart and body was immense – she could have died. This is not the time I nearly lost her. The story continues.

So at 18months, Emily was booked in to have her tonsils and adenoids removed and grommets inserted into her ears. There are always risks when performing surgery on babies. We were told this but we what choice did we have?

The day Emily went into hospital, we were nervous but relieved this problem was going to be sorted once and for all. Robert my husband kissed her ‘good-bye’ as she went into theatre. We waited patiently for her return.

The minutes were ticking by. No news. More minutes when by. No news. We were starting to get worried. Finally she was out. Phew! I was allowed to go into recovery to see her. There they told me that Emily had stopped breathing in theatre but they got her back. This was not the time I nearly lost her either.

Emily was starting to breath on her own so the nurses were preparing to wheel her onto the ward. Then it happened. Emily stopped breathing right before my eyes. Alarms, sirens, running, shouting – it IS just like the movies. Here I was, watching my daughter die. Silence. Spinning. Was this really happening?

A few minutes later – a lifetime for me, Emily started breathing. This was the moment I nearly lost my daughter, my only daughter, forever.

I don’t ever talk about this with friends and family. I don’t feel I need to anymore. Why am I sharing it with you? I learnt a valuable lesson, and I want to tell every parent.

“You know your child best. Don’t take ‘no’ for an answer. If you truly believe something is not right – find someone who will listen.”

Today Emily is a happy and healthy three year old. I am a lucky mum to have her in my life. I am thankful for all the staff at Princess Margaret Hospital. I am proud that I listened to my inner voice. I have a wonderful husband who supported me through this. Life is good.

Janelle Jeffery

Does your child have ‘Jack-in-the-box’ syndrome?

jackintheboxWhat did you say? I said ‘Jack-in-the-box syndrome! This is a child who just loves getting out of bed to see where you are and what you are up too- all hours of the night!!! You walk them back to their bed, and before you know it they are hot on your heels.

This can be frustrating and exhausting for parents who eventually ‘give in’ and let their child either sleep on the couch or hop into their bed, just so the family can get a little sleep. This problem is very common and it usually starts around 2-3 years of age. I speak with many families whereby the dad has been banished from the bed altogether. This sleeping arrangement is not sustainable, nor is it healthy for your relationship with your partner. Your bed is YOUR bed and that is the way it needs to be so you can all get a good night’s sleep.

So, what can you do to solve this problem?

Wait to Transition into a Bed

I would not transition a toddler into a ‘big bed’ until at least 2.5 years of age. The later, the better! Many parents transition their child far too early, trying to fix an existing bad sleep situation only to find it’s worse now they have the freedom to get out on their own.

Communication

Even if your child is not completely verbal, their understanding is amazing. During the day set the expectations for the night in simple ‘kid-friendly’ language. Tell them they will stay in bed the entire night until it’s morning time (at least 6am). I like using a visual timetable that outlines each step of the bedtime routine with the last picture showing them in their bed. Get creative! Bedtime is non-negotiable from here on in.

Rewards

Children are egocentric. If there is something in if for them, they will want to do it. Get a reward chart ready to go and make a big deal about it. Get a ‘treat bag’ and fill it with little surprises. These do not need to be expensive. Items such as books, hair clips, cars and play-dough work well. Each night they remain in their bed, they will earn a sticker on their chart as well as a treat from the bag. Work towards a surprise at the end, like an outing or a special toy.

Consistency

Children test boundaries. They need to know that the rules are the rules no matter what. Rules enable them feel safe and secure in their environment. Children will try and try again to work around the rules BUT really they want you to say ‘NO’. Once you ‘give in’ you will create a bigger problem. Children quickly learn that you mean what you say only some of the time. You need to be strong and firm and have routines in place. If you are consistent all of the time, then the transition will be a lot easier. Change is hard for everybody and it will be met with some protest from your child. Remember you are doing what is best for them AND for your entire family.

Fun

Make bedtime fun. You don’t want your little one dreading bedtime because it’s when they are banished to their room, alone, missing out on the fun elsewhere. Sing songs, read a book together, talk about the day. Purchase some special pyjamas and let them choose which ones to wear.

All children at some stage will want to get out of bed and hop into yours. Armed with this knowledge, the key to success is to be prepared for it. Each night needs to be predictable and you need to be consistent. I have provided some simple tips that can certainly improve the sleep situation overall. The good news is that it is achievable but toddlers/children can be tricky customers. If you find that it is all too difficult, remember I can help you to solve this once and for all with a tailored plan and support program. Contact me here for more information.

Sleep Well,

Janelle Jeffery

Perfect Parenting, is there such a thing?

perfectparentToday, parents put an awful lot of pressure on themselves and each other to be these super parents who do everything and anything perfectly. When we don’t follow the exclusively breastfed, bamboo wearing, organic growing lifestyle, we are judged by everyone around us.

I came to the conclusion very early on that it doesn’t matter what wonderful things you are doing with, or for your child, someone is quick to tell you, you are doing something wrong. The media has a lot to answer for. It is a lot of pressure to conform and so I beg the question, why are mum’s so hard on each other?

My saving grace was my awesome local mother’s group. I must admit, I was nervous attending as I could just imagine all these mum’s sitting around comparing prams, outfits, how long their child slept for, how ‘easy natured’ their child was and who was the first to smile, roll, sit etc. Argh!!!

In fact it was the opposite. We talked about how hard things were, the sleepless nights, the painful breastfeeding and the loss of freedom. It was so refreshing to be around like-minded mums who were all there for support and friendship, and not judgement or competition. Not all groups are like mine, so if you are not happy with yours, look for another one!

The difference between ideal parenting and real parenting is interesting. It all started for me with an emergency c-section instead of a vaginal birth. From there, after six extremely difficult months attempting to breastfeed, I finally accepted that it just wasn’t what my body was meant to do. Having a reflux baby who projectile vomited all day and everyday meant I WAS one of those mum’s who left the house with vomit on her clothes. Reality is far from the beautiful picture of motherhood I had in my head pre-baby.

At the end of each day I could reflect on all the things I didn’t do, or things I could have done better OR I can pour that gorgeous glass of wine as I cook baked beans in the microwave and think- I am a great mother, who loves her daughter so very much. I am doing the best that I can!

Cheers and let us celebrate how awesome we all are!

Sleep Well,

Janelle Jeffery

Help your child to love sleep